The View from Where I Sit

Tag: black blogger

  • Disability Crowdfunding Campaigns within the UK

    By: Daniella Jade Lowe

    I am writing this report about crowdfunding campaigning in the UK, as part of my research for the Purple Vote Campaign, in conjunction with the Legacy International Group.

    Before carrying out my research for this report, I was of the assumption that crowdfunding campaigns were only politically driven. However, to my surprise I am wrong.

    What is crowdfunding?
    Crowdfunding is a different way to raise money for good ideas. People are increasingly bypassing more traditional funding routes such as bank loans or grants and turning instead to the people around them and in their community to support their venture. It’s been around for centuries but the internet makes it possible to reach much bigger audiences than before.

    There are various types of crowdfunding campaigns such as:

    • donation-based crowdfunding
    • Reward-based crowdfunding
    • Debt crowdfunding
    • Equity crowdfunding

    DISABILITY CROWDFUNDING CAMPAIGNS IN THE UK

    Crowdfunding Campaigns are quite popular in the UK.

    SUCCESSFUL CAMPAIGNS

    According to my research, there have been some successful disability related crowdfunding campaigns within the UK.

    For example, Access Enable 1st Start Up is one disability related crowdfunding campaign, that was created to break down the social barriers disabled people face in everyday life by educating businesses about Disability, Access, and Inclusion. On 27th February 2018 they successfully raised £125 with 6 supporters in 56 days.

    Another campaign is Brainhead which was launched in 2013. BrainHead is an app developed by the Autism Diagnostic Research Centre which was successful because it ultimately led to £10,000 being raised through Crowdcube, (a crowdfunding platform) in addition to the project’s £150K grant.

    Disabled People Against Cuts in London also held a ‘Rights not Charity’ crowdfunding campaign. On 25th November 2019 they successfully raised £1,929 with 53 supporters in 28 days.

    Ability Today had a ‘Turning Disability into Ability’ campaign which was successful because they raised £6,700 on November 13th, 2019 with 160 supporters in 69 days.

    Alan Barnes Fund was successful, because they topped £300K in four days. The original target of the Alan Barnes Fund was £500. The Alan Barnes Fund was a personal appeal for health and medical reasons.

    https://fundraising.co.uk/2015/02/02/crowdfunding-campaign-alan-barnes-tops-300k-four-days/

    UNSUCCESSFUL CAMPAIGNS

    On the other hand, there have also been unsuccessful disability related crowdfunding campaigns within the UK.

    For example, Support disabled people in society. Their goal is to make websites accessible for everyone. Their vision is to support disabled people in society. Unfortunately, this project was not successful. https://www.crowdfunder.co.uk/make-websites-accessible-for-everyone

    AME Communicate offers three app-based products for people who are visually impaired, hearing-impaired, and non-native English speakers. They comprise AME Sight (an all-in-one screen magnifier, reader, and character recognition app), AME Translate (which enables users to communicate in other languages via pre-loaded phrases and words) and AME BSL (a British Sign Language interpreter and translator). This campaign was unsuccessful.

    Why?

    “Crowdfunding didn’t allow us to fully represent our goals and show the products off to their best advantage,”

    Teleford admits.

    Grippoz, an innovative wheelchair push-rim cover, crowdfunding made the prospect of developing and mass-producing the product feasible, but it failed, unfortunately, because the Grippoz Kickstarter campaign was only able to raise £5195 of the team’s £22,500 goal.

    The Peers Connection Group was an unsuccessful disability crowdfunding campaign.

    Disability Snowsport UK was also an unsuccessful disability crowdfunding campaign.

    Additional reasons why crowdfunding campaigns are unsuccessful

    Another reason why crowdfunding campaigns fail is due to the lack of momentum within the first 48 hours of launching. It is crucial that you reach a third of your target within 48 hours of launching. If you do not achieve that, studies have shown that campaigns are not likely to succeed.

    https://www.fundingcentral.org.uk/Page.aspx?SP=6549

    https://www.startups.com/library/expert-advice/crowdfunding-pros-cons

    People with disabilities should not need to crowdfund in order to afford basic independence.

    However, I suppose crowdfunding campaigns are a good alternative to charity in the face of austerity. Crowdfunding campaigns for a disability focussed political campaign sounds very effective.

    For example, Cambridge Green Party raised £300 from 10 supporters. Unfortunately, campaigning also requires money for leaflets, letters, posters, ads and more. https://www.justgiving.com/crowdfunding/VirgilGreen

    Additionally, Wales People’s Assembly against austerity, is another crowdfunding campaign that was successful. This was an anti-austerity campaign involved in organising events to protest, protect and fight austerity which negatively affects the most vulnerable. On 25th June 2015 they successfully raised £10 with 1 supporter in 28 days.

    Based on my findings, there is seemingly more successful disability focussed crowdfunding campaigns in the UK than there were unsuccessful disability focussed crowdfunding campaigns.

    As a result, I conclude that crowdfunding campaigns are the best and most effective way to make money, especially for a disability focussed political campaign. It will also be the most modern and effective way to build momentum and raise awareness for disability advocacy and political causes.

    http://www.legacyig.org/purple-vote/

  • Dealing with Disability in the Home: Second edition of series

    By: Daniella Jade Lowe

    Housing and assisted living can be quite scarce for people with disabilities. Most times people with disabilities live with family where they rely on parents for support.

    While living with Spina Bifida and Hydrocephalus, I’ve had the privilege of living in two separate countries, which means I’ve had two separate homes. I was born in England, raised in Bermuda. I have dual nationality, which has resulted in dual perspectives on disability.

    I lived with my parents in Bermuda during my early school years, then I lived independently in England. I completed Primary, Middle and High School in Bermuda then completed college and university in England.

    Living in both countries has been an eye opener for me especially from the perspective of being a wheelchair user.

    Housing in England vs Housing in Bermuda

    Housing in England is completely different to Housing in Bermuda, especially for people with disabilities.

    During my college and university years, I lived in student accommodations that were modified for wheelchair users. Cultural differences impacted this. Once I completed university, I transferred to Assisted Independent Living. I live at a housing scheme called Five Oaks Housing Scheme under Sanctuary Housing Association in Ilkley. Sanctuary Housing Association is a housing corporation dedicated to the disabled community in the UK. https://www.sanctuary-housing.co.uk/.

    I have a great landlord who meets with the residents and I on a quarterly basis. She also communicates effectively, in-person, by phone and email. My bathroom is equipped with handrails to make transferring easy. I also use a profiling bed in addition to my height adjustable electric wheelchair. All counters and tables are low enough for me.

    However there are other people in my flat who require the use of assistive technology.

    Residents who are either unemployed or actively job seeking are eligible for Housing Benefit pays rent in the UK.

    One recurring issue that I’ve experienced in relation to housing is having access to showering facilities instead of bathing facilities. I personally prefer baths to showers.

    According to my research, Bermuda offers Summerhaven Trust. Summerhaven Trust is an assisted living residential complex that provides the opportunity for people with physical disabilities to live in the community. https://helpingservices.bm/listing/summerhaven-residential-home/

    The Bermuda Housing Corporation provides loans for the elderly and the disabled in Bermuda. https://www.bhc.bm/senior-disabled-loans/.

    For the last house that I lived in, before moving to England, my family sought to make the house wheelchair accessible with an escape route for me in case of a fire or flood, by the patio area, but the Department of Planning wouldn’t let us do so because it was too risky. Bermuda has legislation for this. https://planning.gov.bm/index.php/planning-legislation/.

    During my high school years, my father teamed up with a family friend to implement a lift at my house at one point because there were stairs to access and exit the house. Bermuda has legislation for this. http://www.bermudalaws.bm/laws/Consolidated%20Laws/Building%20Authority%20(Elevators%20and%20Lifts)%20Regulations%201962.pdf.

    Additionally, the Disabled Living Allowance is also available while living out here. I’ve also received additional support from Carers like Dignicare and Visioncare.https://www.dignicare.co.uk/, http://www.visioncare.co/.

    https://www.ilkleygazette.co.uk/news/10128744.ilkley-community-centre-back-in-business-after-a-two-year-closure/

    Wheelchair Accessibility: Functioning in Dysfunction

    This is one of the main reasons why I moved to England from Bermuda as a high school graduate.

    Wheelchair Accessibility and mobility issues are just some of the problems that I face as a wheelchair user. Access alleviates the amount of limitations and restrictions on wheelchair users. Failing to ensure wheelchair accessibility is neglecting to provide reasonable adjustments. It is like functioning in dysfunction.

    However, despite all of this, people with disabilities, like me, can lead independent lives even though we experience a restricted level of independence. Yes we do have preferences, goals and ambitions. We also have rights too.

    Throughout this whole ‘Dealing with Disability’ series, I’ve learned that both countries have endeavoured to make mandatory reasonable adjustments for people with disabilities through legislation and finances. Reasonable adjustments, finances and legislation enable us to live independently. This is the way we deal with life.

  • Dealing with Disability in the Church: Third edition of series (Three Perspectives)

    Dealing with Disability in the Church: Third edition of series (Three Perspectives)

    By: Daniella Jade Lowe

    Dealing with Disability in the Church hasn’t been all that bad for me. First of all, I’d like to start out by saying, I’ve attended church all my life. I love church. I get involved in church services mainly by serving on the Audiovisual/Technical Team. I enjoy this.

    While living in Bradford I noticed that their churches have their own private buses to pick up and drop off their members.

    Now I’ve got one ‘bone to pick.’ Why are public buses in England expected to be wheelchair accessible but not private buses? Just an observation.

    However, whenever I asked to use it instead of taxis, I was told they do not take wheelchairs for liability reasons. Also I noticed the church I first attended, had a wheelchair section for easy access in case of a fire. I also attended a university campus church in Bradford.

    On the other hand, while living in Ilkley, there is one church that has a disability ministry for those with intellectual disabilities called the Ark, which meets the first Sunday of every month from 3pm to 6pm. Some other churches may even have Sign Language interpreters for the hearing impaired.

    In relation to handling disability, churches should take on The Good Samaritan Approach.

    Prayer

    I appreciate prayers. I have been asked to be prayed for and gladly accepted such. It can be slightly frustrating when your expectation for a change is so high and it doesn’t come which has discouraged me at times. But I do believe in miracles.

    However, I also know someone who has autism of a different persuasion. Her experiences in the church have almost never been positive. Many times, Christians have prayed for her to be healed of autism.

    She does not personally want to be “healed” of autism, because she believes that God intentionally allows some people to be born with autism or Down Syndrome for his own good reasons, and that these people are fearfully and wonderfully made in the image of God, and perfect just the way they are. They do not need to be healed; God made them like that.

    She feels that her autism is an integral part of who she is, and is not a negative thing, but rather a positive one. She does not feel that autism holds her back.

    When church people pray for her to be healed of autism, without asking her first whether she wants healing, or despite my objections to what they’re doing, that does not empower me. They are deciding on my behalf what direction they think my life should take, but they do not have that right; it’s my life. People with disabilities deserve to be in control of their own lives.

    Instead of being “healed,” all she wants is to be accepted by the church for the peculiar, wonderful, autistic person who she is. She needs acceptance and inclusion.

    When people pray for her to be healed of autism, she perceives them to be indirectly saying,

    “I want God to change you into a normal person, for my own comfort, because I can’t handle that we have a disabled person in our church. I don’t want to deal with having to include disabilities, so it’s easier if I can just try to heal them instead.”

    She fully believes that God does have the power to heal people. But she also believes that when church members wish to pray for a disabled person’s healing, they need to first ask that person whether he or she wants healing or not. If the disabled individual declines the offer, church members need to fully respect this, and not keep pushing healing on the person.

    It is good to be content and happy with life. I do agree to some extent. There is also a way of embracing disability without accepting it as if there’s no hope.

    In other words exhibit faith, despite the odds! Don’t glorify the problem, glorify the problem solver.

    Stating the facts about one’s medical condition isn’t necessarily claiming it but acknowledging that something is different about the way a person functions. We shouldn’t live in denial and shame, especially if people ask genuine questions out of curiosity.

    The Stigma around Medical Intervention

    Another subject I don’t understand is the notion that surgery or taking medicine isn’t faith. I believe God can heal through medical science. Sometimes medical intervention is part of the process. There is also nothing wrong with prayer and a psychologist, social worker or carers.

    Besides, faith without works is dead. I also notice that people tend to judge by appearances. I’m not looking for pity but inclusion.

    Wheelchair Accessibility: Functioning in Dysfunction

    Some churches in England have a health and safety policy where they have designated seating for the physically challenged. They’re also wheelchair accessible for the most part too.

    Wheelchair Accessibility and mobility issues are just some of the problems that the physically challenged face. Access alleviates the amount of limitations and restrictions on wheelchair users. Failing to ensure wheelchair accessibility is neglecting to provide reasonable adjustments. It is like functioning in dysfunction.

    I get really annoyed with drivers who park across dropped kerbs. Dropped kerbs are meant to make it easy for wheelchairs to enter and exit sidewalks. I think that drivers should either be fined or vehicles towed. Alternatively, if the church building isn’t wheelchair accessible, there is the option of watching services online, but then the problem with that is, one can’t mix and mingle with other believers. I suppose this will always be an issue depending on where one lives. There are many other issues that this subject can cover but this video should do the job. Why should your church be Disability Friendly?