The View from Where I Sit

Tag: blogger

  • The frequency of lymphoedema in an adult Spina Bifida population

    The Fight Against Pressure Ulcers

    Lymphoedema


    Lymphoedema is a swelling often of your legs which is due to fluid collecting in the tissues under the skin. This can leave you prone to cellulitis and skin breakdown, and can interfere with independence as your legs get heavy and difficult to move. Ask your GP to arrange treatment with pressure stockings or appliances, which are very effective.

    The National Lymphedema Network (lymphnet.org) defines lymphedema as “an accumulation of lymphatic fluid in the interstitial tissue that causes swelling, most often in the arms and/or legs, and occasionally in other parts of the body. Lymphedema can develop when lymphatic vessels are missing or impaired or when lymph vessels are damaged or lymph nodes removed.

    Feet
    It is suggested that you see a podiatrist/chiropodist regularly to have your toenails cut and hard skin removed if you have loss of feeling or poor circulation in your feet. Use a foot-softening cream on your feet and moisturiser on your legs to prevent cracking as bacteria can enter this way. If your skin is very dry, use aqueous cream instead of soap when bathing. Dry carefully between your toes and treat athlete’s foot straight away. Creams and sprays are available from pharmacies and larger supermarkets.

    There have been very few studies to date documenting the occurrence of lymphedema in the Spina Bifida population, despite a case series in 2001 that suggested that the occurrence may be higher than in the general population. A total of 240 electronic medical records from the Adult Spina Bifida Clinic from January 2005 to August 2008 were retrospectively reviewed.

    This is why incontinence/ moisture management, movement, and sensation are important for Spina Bifida patients.

    10 Methods to tackle swollen feet

    1. Drink 8 to 10 glasses of water per day
      Though it might seem counterintuitive, getting enough fluids actually helps reduce swelling. When your body isn’t hydrated enough, it holds onto the fluid it does have. This contributes to swelling.
    2. Buy compression socks
      Compression socks can be found at a drug or grocery store or even bought online. Start with compression socks that are between 12 to 15 mm or 15 to 20 mm of mercury.

    They come in a variety of weights and compressions, so it might be best to start off with lighter-weight socks and then find the kind that provides the most relief.

    1. Soak in a cool Epsom salt bath for about 15 to 20 minutes
      Epsom salt (magnesium sulfate) may not only help with muscle pain. It may also reduce swelling and inflammation. The theory is that Epsom salt draws out toxins and increases relaxation.

    Just make sure to get Epsom salts marked with the USP designation. This means that it meets standards set forth by the U.S. Food and Drug Administration and is safe to use.

    1. Elevate your feet, preferably above your heart
      Prop your feet on cushions, pillows, or even things like phone books, when you sleep. If you’re looking to reduce foot swelling while pregnant, try elevating your feet several times a day as well. Aim for about 20 minutes at a time, even on an ottoman or a chair.

    Try to avoid standing for long periods of time and stay off your feet when you can.

    1. Get moving!
      If you sit or stand in one area for a long period of time (like at work), this can lead to swollen feet. Try to move a little bit each hour, even if it’s a walk to the break room, a walk around the block at lunch, flexing your knees and ankles, or a lap around the office.
    2. Magnesium supplements can be helpful for some people
      If you retain water, you might have a magnesium deficiency. Eating foods high in magnesium can help. Magnesium-rich foods. Trusted Source to add to your diet include:
    • almonds
    • tofu
    • cashews
    • spinach
    • dark chocolate
    • broccoli
    • avocados
    • Taking 200 to 400 milligrams of magnesium daily might help with the swelling. But before you take any kind of supplement, ask your doctor. Magnesium supplements aren’t right for everyone, especially if you have a kidney or heart condition.
    1. Make some dietary changes
      Reducing your sodium intake can help decrease swelling in your body, including in your feet. Opt for low-sodium versions of your favourite foods, and try to refrain from adding salt to meals.
    2. Lose weight if you’re overweight
      Being overweight can cause reduced blood circulation, leading to swelling of the lower extremities. It can also lead to extra strain on the feet, causing pain when walking. This can result in being more sedentary — which can also cause fluid buildup in the feet.

    Losing weight can help ease the strain on your feet and possibly reduce foot swelling as well. Talk with your doctor about whether you need to lose weight and healthy ways to go about doing so.

    1. Massage your feet
      Massage can be great for swollen feet and can also promote relaxation. Massage (or have someone massage them for you!) your feet toward your heart with firm strokes and some pressure. This can help move the fluid out of the area and reduce swelling.
    2. Increase your intake of potassium-rich foods
      A potassium deficiency can contribute to high blood pressure and water retention. If you have no dietary restrictions, consider eating foods containing potassium. Some potassium-rich foods. Trusted Source include:
    • sweet potatoes
    • white beans
    • bananas
    • salmon
    • pistachios
    • chicken
    • Try drinking orange juice or low-fat milk instead of soda, too. If you have any medical conditions, especially kidney issues, talk with your doctor before adding lots of potassium to your diet.

    How long should I elevate my feet to reduce swelling?


    The more the swelling and the longer there has been swelling, the longer and more frequently your need to elevate your legs. Start with 20 minutes twice a day. This might do the trick. If not, go to 30 minutes or even an hour.

    LET’S WORK TOGETHER TO STOP THE PRESSURE!!!

    https://www.shinecharity.org.uk/self-care/skin-and-tissue

    https://mobilitymgmt.com/Articles/2011/06/01/Lymphedema.aspx

  • Dealing with Disability in the Home: Second edition of series

    By: Daniella Jade Lowe

    Housing and assisted living can be quite scarce for people with disabilities. Most times people with disabilities live with family where they rely on parents for support.

    While living with Spina Bifida and Hydrocephalus, I’ve had the privilege of living in two separate countries, which means I’ve had two separate homes. I was born in England, raised in Bermuda. I have dual nationality, which has resulted in dual perspectives on disability.

    I lived with my parents in Bermuda during my early school years, then I lived independently in England. I completed Primary, Middle and High School in Bermuda then completed college and university in England.

    Living in both countries has been an eye opener for me especially from the perspective of being a wheelchair user.

    Housing in England vs Housing in Bermuda

    Housing in England is completely different to Housing in Bermuda, especially for people with disabilities.

    During my college and university years, I lived in student accommodations that were modified for wheelchair users. Cultural differences impacted this. Once I completed university, I transferred to Assisted Independent Living. I live at a housing scheme called Five Oaks Housing Scheme under Sanctuary Housing Association in Ilkley. Sanctuary Housing Association is a housing corporation dedicated to the disabled community in the UK. https://www.sanctuary-housing.co.uk/.

    I have a great landlord who meets with the residents and I on a quarterly basis. She also communicates effectively, in-person, by phone and email. My bathroom is equipped with handrails to make transferring easy. I also use a profiling bed in addition to my height adjustable electric wheelchair. All counters and tables are low enough for me.

    However there are other people in my flat who require the use of assistive technology.

    Residents who are either unemployed or actively job seeking are eligible for Housing Benefit pays rent in the UK.

    One recurring issue that I’ve experienced in relation to housing is having access to showering facilities instead of bathing facilities. I personally prefer baths to showers.

    According to my research, Bermuda offers Summerhaven Trust. Summerhaven Trust is an assisted living residential complex that provides the opportunity for people with physical disabilities to live in the community. https://helpingservices.bm/listing/summerhaven-residential-home/

    The Bermuda Housing Corporation provides loans for the elderly and the disabled in Bermuda. https://www.bhc.bm/senior-disabled-loans/.

    For the last house that I lived in, before moving to England, my family sought to make the house wheelchair accessible with an escape route for me in case of a fire or flood, by the patio area, but the Department of Planning wouldn’t let us do so because it was too risky. Bermuda has legislation for this. https://planning.gov.bm/index.php/planning-legislation/.

    During my high school years, my father teamed up with a family friend to implement a lift at my house at one point because there were stairs to access and exit the house. Bermuda has legislation for this. http://www.bermudalaws.bm/laws/Consolidated%20Laws/Building%20Authority%20(Elevators%20and%20Lifts)%20Regulations%201962.pdf.

    Additionally, the Disabled Living Allowance is also available while living out here. I’ve also received additional support from Carers like Dignicare and Visioncare.https://www.dignicare.co.uk/, http://www.visioncare.co/.

    https://www.ilkleygazette.co.uk/news/10128744.ilkley-community-centre-back-in-business-after-a-two-year-closure/

    Wheelchair Accessibility: Functioning in Dysfunction

    This is one of the main reasons why I moved to England from Bermuda as a high school graduate.

    Wheelchair Accessibility and mobility issues are just some of the problems that I face as a wheelchair user. Access alleviates the amount of limitations and restrictions on wheelchair users. Failing to ensure wheelchair accessibility is neglecting to provide reasonable adjustments. It is like functioning in dysfunction.

    However, despite all of this, people with disabilities, like me, can lead independent lives even though we experience a restricted level of independence. Yes we do have preferences, goals and ambitions. We also have rights too.

    Throughout this whole ‘Dealing with Disability’ series, I’ve learned that both countries have endeavoured to make mandatory reasonable adjustments for people with disabilities through legislation and finances. Reasonable adjustments, finances and legislation enable us to live independently. This is the way we deal with life.

  • Models of Disability

    Models of Disability

    By: Daniella Jade Lowe

    What is Disability?

    Over the years, classifying and defining disability has become quite tedious. There are various examples to describe disability.

    Disability is seen as a ‘social construct.’ It is the idea that society and its’ institutions have the authority to construct disability around social expectations. In medieval times, disability was constructed around a person’s moral behaviour.

    Disability is defined as a physical or mental condition that limits a person’s movements, senses, or activities. According to an article I read from meriahnichols.com, ‘dis’ is another way of doing and being. The term disability is an ability to do or be in another way. The term disabled is an ability to do or be something, in another way-https://www.meriahnichols.com/3-reasons-say-disability-instead-special-needs/.

    Even though, I’ve only identified three models of disability, according to research there seems to be loads more.

    Models of Disability are tools for defining impairment and for providing a basis upon which government and society can devise strategies for meeting the needs of disabled people.

    Medical Model of Disability

    The medical model describes disability as a consequence of a health condition, disease or caused by a trauma that can disrupt the functioning of a person in a physiological or cognitive way.

    This model is a conceptualization of disability as a condition a person has and focuses on the prevention, treatment or curing of the disabling condition.

    Functional Model of Disability

    This model is similar to the medical model because it conceptualizes disability as an impairment or deficit. Disability is caused by physical, medical or cognitive deficits. The disability itself limits a person’s functioning or the ability to perform functional activities.

    Social Model of Disability

    The Social Model of Disability includes people’s views, opinions and attitudes. It has been the prominent approach to disability over the last 30+ years.

    It was developed by disabled people based on real life experience of discrimination, inclusion and challenging disabling barriers. It is outward looking and focused on the things in society that can be changed or improved, like, the environment, information, communications and people’s attitudes.

    It’s a problem solving approach which gives disabled people greater control over vital, even basic decisions, like, from what time to get out of bed on a morning to employability and education choices.

    This approach enables you to better understand how reasonable adjustments can be implemented. It also focuses on the things you can influence or change and promotes valued skills.

    In conclusion, the purpose behind the models of disability is to highlight the political struggle of disability. It analyzes the ‘problem of disability.’ It also affects policy making, so that we can make positive change in our society for people with disabilities.

    Since laws are already created to discriminate against disabled people by default, we need to make sure that the Social Model of Disability is pushed to ensure equality.

    For more information on the various models of disability, check out this website: https://www.disabled-world.com/definitions/disability-models.php.

  • “WHAT IS DISABILITY???”

    “WHAT IS DISABILITY???”

    By: Daniella Jade Lowe

    When we think of disability we so often think of wheelchairs (understandable when you consider the disability symbol that is used everywhere), yet only 5% of disabled people actually use a wheelchair. People also tend to confuse a disability with a sickness.

    Disability vs Illness

    An illness is a sickness. Some illnesses are acute, which means they come on quickly and are over quickly (like a cold or the flu). Other illnesses are chronic, which means they last a long time and perhaps a lifetime (like asthma or diabetes). However, a disability is a physical or mental problem that makes it harder to do normal daily activities. You can be born with a disability or get it from an illness or an injury.

    Let’s break this down into simple terms:

    Physical impairments

    Well, this could include anything from a loss of a limb to an agility or sensory impairment, such as visual or hearing. It would also consist of health conditions with fluctuating effects such as Diabetes, Cancer, Osteoporosis, MS, ME, Fibromyalgia, Chronic Fatigue Syndrome and Arthritis. Also involved would be progressive conditions such as Muscular Dystrophy and Motor Neurone Disease, and respiratory conditions such as Asthma, and Cardiovascular diseases, including Thrombosis, Stroke and Heart Disease.

    Mental impairments

    Well, this would include learning disabilities such as Downs Syndrome. It would also comprise of developmental disorders such as Autism, Asperger’s, Dyslexia and Dyspraxia. Also covered under mental impairments are mental health issues. This could include anything from severe Depression, Nervous Breakdown, OCD, Eating Disorders, Dementia, Bi-polar Disorder, Schizophrenia, as well as some personality disorders and self-harming behaviour.

    Long-term

    This is where the effect of the impairment has lasted or is likely to last for at least twelve months. There are also special rules for recurring or fluctuating conditions.

    Normal day-to-day activities

    Well, this would include everyday things that everyone does, like cooking a meal, having a bath or wash, or walking to the shop.

    What does disability not include?

    Definitely not included in the definition are conditions such as hay fever, alcoholism, addiction, exhibitionism, voyeurism or a tendency to steal abuse or set fires.

    Screening disability can be very difficult, especially since it’s challenging to distinguish between disability and impairment. In regards to disability, one must first measure the level of ones’ ability before they can determine disability. Also when dealing with disability, many of these individuals are stereotyped, ostracized and treated as less of a person based on the stigma that comes from ones’ opinion or idea of ‘normal’.

    Well, what is normal?

    Regarding one’s general health, the term is explained as, physically, mentally, and emotionally healthy. There is no exhaustive checklist which defines disability. What’s most important is the impact and effect of the condition on someone’s day to day activities. It is also important that you don’t make judgements about how impairment is caused.

    For example, liver disease caused by alcoholism would still be considered a disability, although alcoholism itself would not. The most important thing is to never make assumptions. Someone with a disability can be very, physically, fit and strong, highly intelligent and articulate.

    “No disability or dictionary out there, is capable of clearly defining who we are as a person.”

    Robert M. Hensel