Tag: advocate

  • Hygiene and Amputation

    With foot deformities and insensate feet, Spina Bifida patients are at risk of foot skin breakdown, pressure ulcers, and osteomyelitis. Rarely, pressure ulcers progress to squamous cell carcinoma. Spina Bifida patients may require limb amputation for osteomyelitis, foot ulcers, and squamous cell carcinoma. There is concern that transtibial amputations would have poor functional outcomes in Spina Bifida patients because of lower-extremity weakness.

    However, there is no available literature on transtibial amputation outcomes in this population. More distal calcanectomy and Symes amputations have been successful in restoring ambulation in lower-level Spina Bifida patients. https://journals.lww.com/ajpmr/Fulltext/2015/11000/From_Wheelchair_to_Cane__Elective_Transtibial.10.aspx

    Foot Care for Amputees

    LOOK
    Check your feet every day for any changes and use a hand mirror to see underneath your feet.


    PROTECT
    Wear correct fitting shoes and never go barefoot


    PREVENT
    Don’t allow problems to occur – wash and dry your feet properly every day.


    SEEK
    If you notice any changes immediately seek medical advice from a foot care professional


    DO
    Have an annual foot check from a podiatrist.

    For more information, you can search http://www.limbs4life.org.

  • The frequency of lymphoedema in an adult Spina Bifida population

    The Fight Against Pressure Ulcers

    Lymphoedema


    Lymphoedema is a swelling often of your legs which is due to fluid collecting in the tissues under the skin. This can leave you prone to cellulitis and skin breakdown, and can interfere with independence as your legs get heavy and difficult to move. Ask your GP to arrange treatment with pressure stockings or appliances, which are very effective.

    The National Lymphedema Network (lymphnet.org) defines lymphedema as “an accumulation of lymphatic fluid in the interstitial tissue that causes swelling, most often in the arms and/or legs, and occasionally in other parts of the body. Lymphedema can develop when lymphatic vessels are missing or impaired or when lymph vessels are damaged or lymph nodes removed.

    Feet
    It is suggested that you see a podiatrist/chiropodist regularly to have your toenails cut and hard skin removed if you have loss of feeling or poor circulation in your feet. Use a foot-softening cream on your feet and moisturiser on your legs to prevent cracking as bacteria can enter this way. If your skin is very dry, use aqueous cream instead of soap when bathing. Dry carefully between your toes and treat athlete’s foot straight away. Creams and sprays are available from pharmacies and larger supermarkets.

    There have been very few studies to date documenting the occurrence of lymphedema in the Spina Bifida population, despite a case series in 2001 that suggested that the occurrence may be higher than in the general population. A total of 240 electronic medical records from the Adult Spina Bifida Clinic from January 2005 to August 2008 were retrospectively reviewed.

    This is why incontinence/ moisture management, movement, and sensation are important for Spina Bifida patients.

    10 Methods to tackle swollen feet

    1. Drink 8 to 10 glasses of water per day
      Though it might seem counterintuitive, getting enough fluids actually helps reduce swelling. When your body isn’t hydrated enough, it holds onto the fluid it does have. This contributes to swelling.
    2. Buy compression socks
      Compression socks can be found at a drug or grocery store or even bought online. Start with compression socks that are between 12 to 15 mm or 15 to 20 mm of mercury.

    They come in a variety of weights and compressions, so it might be best to start off with lighter-weight socks and then find the kind that provides the most relief.

    1. Soak in a cool Epsom salt bath for about 15 to 20 minutes
      Epsom salt (magnesium sulfate) may not only help with muscle pain. It may also reduce swelling and inflammation. The theory is that Epsom salt draws out toxins and increases relaxation.

    Just make sure to get Epsom salts marked with the USP designation. This means that it meets standards set forth by the U.S. Food and Drug Administration and is safe to use.

    1. Elevate your feet, preferably above your heart
      Prop your feet on cushions, pillows, or even things like phone books, when you sleep. If you’re looking to reduce foot swelling while pregnant, try elevating your feet several times a day as well. Aim for about 20 minutes at a time, even on an ottoman or a chair.

    Try to avoid standing for long periods of time and stay off your feet when you can.

    1. Get moving!
      If you sit or stand in one area for a long period of time (like at work), this can lead to swollen feet. Try to move a little bit each hour, even if it’s a walk to the break room, a walk around the block at lunch, flexing your knees and ankles, or a lap around the office.
    2. Magnesium supplements can be helpful for some people
      If you retain water, you might have a magnesium deficiency. Eating foods high in magnesium can help. Magnesium-rich foods. Trusted Source to add to your diet include:
    • almonds
    • tofu
    • cashews
    • spinach
    • dark chocolate
    • broccoli
    • avocados
    • Taking 200 to 400 milligrams of magnesium daily might help with the swelling. But before you take any kind of supplement, ask your doctor. Magnesium supplements aren’t right for everyone, especially if you have a kidney or heart condition.
    1. Make some dietary changes
      Reducing your sodium intake can help decrease swelling in your body, including in your feet. Opt for low-sodium versions of your favourite foods, and try to refrain from adding salt to meals.
    2. Lose weight if you’re overweight
      Being overweight can cause reduced blood circulation, leading to swelling of the lower extremities. It can also lead to extra strain on the feet, causing pain when walking. This can result in being more sedentary — which can also cause fluid buildup in the feet.

    Losing weight can help ease the strain on your feet and possibly reduce foot swelling as well. Talk with your doctor about whether you need to lose weight and healthy ways to go about doing so.

    1. Massage your feet
      Massage can be great for swollen feet and can also promote relaxation. Massage (or have someone massage them for you!) your feet toward your heart with firm strokes and some pressure. This can help move the fluid out of the area and reduce swelling.
    2. Increase your intake of potassium-rich foods
      A potassium deficiency can contribute to high blood pressure and water retention. If you have no dietary restrictions, consider eating foods containing potassium. Some potassium-rich foods. Trusted Source include:
    • sweet potatoes
    • white beans
    • bananas
    • salmon
    • pistachios
    • chicken
    • Try drinking orange juice or low-fat milk instead of soda, too. If you have any medical conditions, especially kidney issues, talk with your doctor before adding lots of potassium to your diet.

    How long should I elevate my feet to reduce swelling?


    The more the swelling and the longer there has been swelling, the longer and more frequently your need to elevate your legs. Start with 20 minutes twice a day. This might do the trick. If not, go to 30 minutes or even an hour.

    LET’S WORK TOGETHER TO STOP THE PRESSURE!!!

    https://www.shinecharity.org.uk/self-care/skin-and-tissue

    https://mobilitymgmt.com/Articles/2011/06/01/Lymphedema.aspx

  • PICOs and Pressure Ulcers

    Technology

    PICO is a canister-free, single-use, negative pressure wound therapy system consisting of a sterile pump and multi-layered adhesive dressings. Each dressing has 4 layers: a silicone adhesive wound contact layer, which is designed to minimise pain and damage during peel-back and to reduce lateral tension; an airlock layer for even distribution of pressure; an absorbent layer to remove exudate and bacteria from the wound; and a top film layer, which acts as a physical barrier and allows moisture to evaporate. The pump is operated by 2 AA batteries and delivers a continuous negative pressure of 80 mmHg to a sealed wound. Once activated, using a push button, the battery drives the pump for up to 7 days and LEDs provide alerts for low-battery status and pressure leaks.

    Standard PICO dressings come in 8 sizes: 10×20 cm, 10×30 cm, 10×40 cm, 15×15 cm, 15×20 cm, 15×30 cm, 20×20 cm and 25×25 cm. Multisite PICO dressings come in 2 sizes: small (15×20 cm) and large (20×25 cm).

    The latest version of the technology is the PICO7 system. This differs from the version of PICO notified to NICE by having an improved pump to minimise leakage and an integrated belt clip to allow for easier transport. The PICO7 pump contains a magnet and it should be positioned at least 10 cm (4 inches) away from other medical devices that could be affected by magnetic interference.

    Innovative aspects

    PICO differs from conventional negative pressure wound dressings in that it:

    • has no separate canister
    • is portable and disposable
    • has a proprietary dressing layer that is designed to allow even distribution of negative pressure across the incision and zone of injury.

    The Purpose behind the PICO

    PICO is intended for surgical incisions with low or moderate levels of exudate. This guidance focuses on the use of PICO dressings for closed surgical incisions. PICO dressings can be applied by healthcare professionals including surgeons and tissue viability nurses for people in a range of care settings. Training is needed to place the dressings correctly. My District Nurses are the only ones that can dress, undress and re-dress my wounds.

    Costs

    Standard PICO dressings are available in 8 different sizes. Each pack includes a single-use pump and 2 dressings. The list prices for PICO dressings range from £127.06 to £145.68 (including VAT).
    https://www.smith-nephew.com/key-products/advanced-wound-management/pico/.

    LET’S WORK TOGETHER TO STOP THE PRESSURE!!!

  • The Fight Against Pressure Ulcers!!!

    MORE TIPS

    Skin Checks
    Surfaces- Beware of pressure on pelvic bones depending on how you sit.
    Keep Moving
    Increased Moisture Management because increased moisture could imply or result in heart failure.
    Nutrition

    STOP THE PRESSURE!!!

    http://www.legsmatter.org.

  • Understanding and making a difference to tackling Disability Hate Crime

    Hate Crime vs General Crime

    Any crime can be prosecuted as a hate crime if the offender has either demonstrated hostility based on race, religion, disability, sexual orientation or transgender identity
    Or

    been motivated by hostility based on race, religion, disability, sexual orientation or transgender identity
    Someone can be a victim of more than one type of hate crime.

    These crimes are covered by legislation (Crime and Disorder Act 1998 and section 66 of the Sentencing Act 2020) which allows prosecutors to apply for an uplift in sentence for those convicted of a hate crime.

    The reason for failed investigation is ineffective reporting.

    Be more specific. Provide more details.

    victim vs perpetrator- responsibility falls on the victim

    Victims are seen as vulnerable and insignificant not equal. https://bradfordforeveryone.co.uk/

    It’s the first day of Hate Crime Awareness Week and we are encouraging victims of hate crime to speak out.

    What is being done to fight this?

    Monday, 11th October

    Bradford District’s Hate Crime Strategy 2021-24 Launch Event

    The event will bring together key partnership organisations, groups identified as one of the 5 ‘Protected characteristic’ groups, community and faith representatives.

    Tuesday, 12th October

    Hate Crime Conference

    Hate Crime Awareness Week is week of actions to encourage local authorities, key partners and communities affected by hate crime to work together to tackle local hate crime.

    Wednesday, 13th October

    Coffee and Cake Morning

    The Equity Centre is a Hate Crime Reporting Centre, however this event provides people with a chance to meet others over a hot drink and some cake/biscuits.

    Eastern European Community Hate Crime Awareness

    Several of the Districts main organisations working in the hate crime space such as Bradford Council, Bradford Hate Crime Alliance, West Yorkshire Police and Victims Support will be there to explain their roles, explain what is hate crime, where and how it can be reported and Q&A session

    Thursday, 14th October

    Hate Crime Question Time

    The Panelists will explain what type of hate crime-related work they are undertaking and will answer questions from the online audience.

    Hate Crime Awareness event for the Bradford African Community

    Several of the Districts main organisations working in the hate crime space such as Bradford Council, Bradford Hate Crime Alliance, West Yorkshire Police and Victims Support will be there to explain their roles, explain what is hate crime, where and how it can be reported and Q&A session.

    Friday, 15th October

    Make Sure It Adds Up – Bradford District Anti Rumour Strategy

    A chance to learn more about the Bradford For Everyone campaign to reduce rumours and increase critical thinking with the aim to reduce hate crime overall. Find out more about our online resources and forthcoming pledge.

    Saturday, 16th October

    Bradford City Football Club

    BCFC have invited 30 members from the ‘emerging communities’ to attend the match, take the Root Out Racism banner onto the pitch before the game, players will be supporting the hate crime awareness week in the days leading up to the game.
    For more information on reporting hate crime check out this website at: https://www.cps.gov.uk/crime-info/hate-crime.

    Being different is not a crime. Victimisation is prejudice!

  • Dietary Impact of Food on Pressure Ulcers

    Pressure ulcers (also known as pressure sores) occur when the skin and surrounding tissue is damaged by medical devices or the weight of the body pressing down. This restricts blood flow and the delivery of oxygen and nutrients to the area. They often develop where bones are close to the skin such as on the lower back/spine, hips, heels and elbows. Having a poor nutrient and fluid intake can increase the risk of pressure ulcers.

    The risk increases in those who are underweight or overweight. Maintaining a healthy weight and eating a balanced diet can reduce the risk of developing pressure ulcers. You should try to adopt a meal plan like this:

    Breakfast
    Mid-morning snack
    Lunch
    Mid-afternoon snack
    Dinner
    dessert

    This is because being overweight can reduce mobility and increase the weight bearing load through pressure areas such as the bottom.
    Being underweight can mean there is less natural padding on bony areas such as the bottom and hips.
    The skin needs a good supply of fluid and nutrients to maintain its circulation and keep it supple.


    Nutrition and pressure damage
    Once a pressure ulcer has developed, nutrition plays a vital role in the healing process. This is because the body needs protein, energy (calories), vitamins and minerals (such as vitamin C, iron and zinc), and plenty of fluids to support the wound healing process.

    Protein
    Your body may need more protein if you have a pressure ulcer. Foods that are high in protein include meat, fish, eggs, dairy products, nuts, beans and pulses. Try to have at least one of these foods at each meal. Aim to have one pint of milk per day or a variety of milk and dairy foods such as milk puddings, cheese or yoghurts.

    If you are overweight choose low fat versions. They contain the same amount of protein as full fat versions but are lower in calories. There are also some yoghurts, ice cream and milks available that contain higher amounts of protein.

    If you use milk substitutes, soya milk contains a similar amount of protein as cow’s milk. Oat, rice, hemp and nut based milks contain significantly less protein.

    Iron
    Iron is important for the healing process by helping to maintain adequate blood haemoglobin levels. Foods that are good sources of iron include meat, fish and eggs. Iron is also found in other food such as beans, pulses, green vegetables and dried fruit, but these are less easily absorbed.

    Vitamin C
    Vitamin C helps with the absorption of iron from your food and also directly with the healing process. Vitamin C is found in a wide variety of fruit and vegetables. It is not stored in the body so a daily supply is needed. Vitamin C is destroyed during the cooking process, so it is important not to overcook your vegetables, or if possible, steam them. Drinking a small glass of fruit juice (150ml) with your meal is a good way to improve your intake. If your vitamin C intake remains low you may need to take a supplement.

    Zinc
    Zinc is important for the formation of new skin tissue and to help pressure ulcers to heal. Good sources are lean red meat, shell fish, milk, cheese, bread, lentils, beans and cereal products such as wheatgerm.

    Vitamin and mineral supplements
    If you cannot eat enough foods containing key vitamins and minerals then you may need to take a supplement. If you are unable to manage a varied diet, or have a poor appetite, an “A to Z” type vitamin and mineral supplement may be necessary and these are available from many high street chemists. If you are managing to eat a full and varied diet then there is no benefit in taking high levels of vitamins and mineral supplements – in fact, this can be harmful.

    Fluid
    Dehydrated skin can become dry and fragile. It is important that your skin is kept moist from the inside. You should aim for 1.5 to two litres per day (six to ten mugs). This could include any liquid (tea, coffee, milk, water, juice) but not alcohol. If you are overweight avoid drinks that contain sugar, choosing sugar free alternatives or using low-calorie sweeteners in hot drinks.

    Body weight
    If you are overweight, losing weight could help to reduce the risk of pressure ulcers and protect a newly healed pressure ulcer. However, if you restrict your intake too much whilst a pressure ulcer is healing it could delay the healing process.

    It is important that you maintain a balance to your diet so that your body continues to get all the nutrients it needs. Simple changes that you could make to your diet if you are overweight are:

    • Cutting out sugar from hot drinks or using a sweetener.
    • Using low fat cooking methods such as grilling, baking, microwaving or steaming rather than frying.
    • Opting for snacks that are lower in energy and fat such as low fat yoghurts and fruit.
    • Remember to have meals that are balanced. Try not to miss meals.
    • Aim to lose an average of no more than 0.5 to 1kg a week.


    If you are underweight, pressure ulcers need a lot of nutrients to help them heal. If you are underweight you may not have enough nutrient stores in your body so you will need extra nutrition from your diet. Without nutrients the healing process may take longer. Some changes that could help to increase your intake are:

    Ensure that you have regular meals. If you find it difficult to prepare and cook meals then there are a wide variety of tinned, chilled or frozen ‘ready meals’ available. Frozen or tinned vegetables can also be useful.
    Try to have three small meals and two to three nourishing snacks throughout the day (such as yoghurts, cheese, nuts and biscuits).
    If your appetite is poor, try to also include two nourishing drinks each day such as: milk, malted milk drinks, fruit juice or powdered supplement drinks which are available from your local chemist or supermarket.
    Oral Nutritional Supplements (sip feeds)
    If your food intake remains low, it may not be enough to help heal the pressure ulcer. If this is the case, it may be necessary for you to have some prescribed oral nutritional supplements. These types of drinks provide a rich source of energy, protein and other nutrients. A dietitian may be available to discuss with you the most appropriate one and how many you will need. You should not take additional vitamins and mineral supplements if you are taking three or more oral nutritional supplements per day.

    If you have diabetes, poorly controlled diabetes can delay healing. Diet and medication may need to be adjusted to achieve good diabetic control. Speak to your GP, nurse or dietitian if you require help with this.

    Eating a balanced diet and having a healthy body weight will help to reduce the risk of developing a pressure ulcer. If you have a pressure ulcer, eating and drinking well will help it to heal. If you are overweight then it would be beneficial to try to lose weight gradually. If you are underweight then weight gain will help improve the padding over the bones. This can be best achieved by eating small and frequent meals and snacks.

    For more information, you can follow: https://www.bda.uk.com/resource/pressure-ulcers-pressure-sores-diet.html.

  • What is the difference between a Disability Minister and a Disability Commissioner?

    By: Daniella Jade Lowe

    Ministers and commissioners are both important for ensuring fairness in human rights. They also reinforce diversity. They are appointed by the Queen. The UK has both.

    However, the difference between a minister and a commissioner, is that a minister is a person who is commissioned by the government for public service, while a commissioner is a member of a committee.

    Disability Minister


    Responsibilities

    The minister’s responsibilities include:

    • responsibility for the departmental strategy on disability and disability employment
    • cross-government responsibility for disabled people
    • Employment and Support Allowance
    • Personal Independence Payment
    • Disability Living Allowance and elements of Universal Credit that relate to disabled people, including severe disability premium
    • work and health strategy including sponsorship of the joint Department for Work and Pensions and Department for Health and Social Care Work and Health Unit
    • disability benefit reform
    • devolution framework
    • Carer’s Allowance
    • future relations with the EU
    • Motability
    • arms-length compensation schemes

    Disability Commissioner

    Responsibilities
    The Commissioner conducts visits to help raise the standards of human rights protection in all Council of Europe member states, in accordance with his mandate.

    Visits aim at pursuing a direct dialogue with the authorities and looking into one or several specific issues. The Commissioner is currently carrying out more targeted country visits focused on specific topics. A report may be published, containing conclusions and relevant recommendations to help redress shortcomings. Some of these reports may also relate to crisis situations and human rights in conflict areas.

    Based on my research, I think it is more effective and beneficial to have a Disability Minister to help advocate for disability rights because their role is multifaceted and unrestricted. They have more legislative privileges.

    https://petitions.senedd.wales/petitions/244164

    https://www.coe.int/en/web/commissioner/the-commissioner

    https://www.disabilitynewsservice.com/new-disabled-commissioner-astounded-and-offended-by-ehrc-treatment/

    https://www.coe.int/en/web/commissioner/mandate

  • Interview with Access Adviser

    Q: Tell us a little bit about yourself.
    A: My name is Daniella Jade Lowe. I am a university graduate with a BA degree focused on History and Politics from the University of Bradford, England. Journalism and Politics are my passion. I am an emerging Journalist, Politician and Disability Advocate. My motive behind doing this was to be an advocate for people with disabilities. I am also marketing myself as an Access Consultant.

    Q: What is your experience of life as a disabled person?
    A: I have advocated for Wheelchair Accessibility in Bermuda, by writing various articles for numerous publications on the subject. In fact, one of the reasons why I pursued further education and started my career in England was due to Wheelchair Accessibility. During Middle School and High School, I used a Garaventa StairTrac for navigating the school for classes. I have even represented Bermuda at the London 2012 Paralympic Games as a reporter for Bermuda’s Paralympian Jessica Lewis. During the games I also assessed the level of Wheelchair Accessibility at the event.

    Q: How would you describe your disability?
    A: I was diagnosed with Spina Bifida and Hydrocephalus at birth. This condition is neurological. It comes with mobility issues and learning difficulties. As a result, I use a wheelchair for mobility.

    Q: What is accessibility like where you live?
    A
    : Accessibility is terrible in Bermuda. Accessibility is much better in England.

    Q: Where is your favourite place for accessibility & why?
    A: Bradford and Ilkley are great for Wheelchair Access because there are plenty of ramps, lifts, and flat surfaces. Leeds has Disability Confident companies too.

    Q: What is one accessibility improvement that you would like to see?
    A:
    Travelling around London can be improved especially when using the Tube or the Underground. Gatwick Airport is better for Wheelchair Accessibility than Heathrow Airport is.

    For more information about Access Adviser, please visit https://accessadvisr.net.

  • WHAT IS AN ASBAH AMBASSADOR?

    WHAT IS AN ASBAH AMBASSADOR?

    By: Daniella Jade Lowe

    The Association for Spina Bifida and Hydrocephalus is a charity that was founded in 1967. ASBAH is the local association and does peer support, activities and events to bring the Spina Bifida and Hydrocephalus community together.

    Katy Raven is the Project Manager for ASBAH. This charity is comprised of volunteers, parents/carers, children, adults and committee members.

    This organisation covers North and West Yorkshire which includes Cheshire, East Riding of Yorkshire, Greater Manchester, Halton-Runcorn, Halton-Widnes, Kingston Upon Hull, Lancashire, Merseyside, Middlesbrough, North East Lincolnshire, North Lincolnshire, North Staffordshire, North Yorkshire, Redcar/Cleveland, Shropshire, South Yorkshire, Wakefield, Warrington, West Yorkshire, Wigan and Wirral.

    ‘Supporting you to flourish and thrive’ is the slogan for the ASBAH foundation. By supporting, informing, and campaigning, North & West Yorkshire ASBAH is continuing to help promote individual choice, control, and quality of life for all the people who use their services.

    It is very important for people who are born with a developmental disability to have a good support network through peer support and befriending, especially if they are excluded from mainstream education and employment and always have to push for inclusion. It helps them to thrive and flourish.

    For the past 13 years, I have been a recipient of this charity’s services. They’ve helped me with medical support, educational advice, Spina Bifida clinics, job-searching assistance, interviews, companionship, advocacy, applying for financial support and wheelchair services. They also played a role in helping me get my first electric wheelchair during my first year of college.

    It all started back in the summer of 2009, when I originally moved to Bradford to start college. Upon arriving at the student accommodation, I met Miss Joan Pheasant, a chairman from the board of the ASBAH foundation. I found out about this charity through online research while still living in Bermuda. My case was slightly unusual because, I think I am the only international ASBAH member.

    For the sake of awareness, this organisation has decided to start an initiative called ASBAH Ambassadors and I’ve chosen to join in to advocate for others with Spina Bifida and Hydrocephalus.

    For example, one way that they do this is by celebrating Spina Bifida Week from October 25th to the 29th annually. During this week, they have campaigns and forums to educate people on the subject.

    In my opinion, being an ASBAH Ambassador is about disability representation, not just sharing information and advocating. It’s also about raising awareness. For me, being an ASBAH Ambassador is also about networking. This is why we have a befriending initiative too.

    I strongly feel that this charity has helped me to mature and properly manage my disability related issues. I definitely found it difficult to prioritise my medical affairs, finances, social life and education, especially during my first year of college.

    When I first started college, I remember participating in the Go Folic Campaign with ASBAH for Spina Bifida Week (https://www.totalhealth.co.uk/blog/importance-folate-prior-conception-go-folic-you-frolic). These campaigns and forums taught me how to improve the way I take care of myself, especially in diet and personal hygiene. ASBAH has definitely helped me to flourish and thrive in my health, education, social life and finances.

    Joan Pheasant has even helped me with transportation to and from appointments and legal advice (https://www.keighleynews.co.uk/news/12965951.keighley-group-takes-taxi-overcharging-campaign-district-wide/.)

    I’ve also been to various annual social events like afternoon tea at the Clevedon House in Ilkley and Christmas dinners in Leeds, as a member of the ASBAH Association. One Sunday, we even went to lunch at the Cow and Calf in Ilkley.

    I appreciate this and feel it was beneficial to me because I know what it is like to live in a country that does not provide these services. I’ve learned a lot from this charity, like how to approach interviews and applying for benefits. I also feel that my social skills have improved. This charity is definitely needed and a great asset to the community especially for the expectant families and parents with Spina Bifida and Hydrocephalus. When I grew up I didn’t have access to these services. I went to private nursery and preschool because not everyone was willing to take on a child with a disability.

    For more information, you can check out their Facebook page: https://www.facebook.com/ASBAHNWY.

    You can also log onto their website: https://www.nwyasbah.org/?fbclid=IwAR3GIzZsOSyRXiRwD7l-qiVaDIle0ezgXHk7puKhBNDnh_PEPTT6cuVuBP4.

  • The Equality Act: What has changed 10 years later?

    By: Daniella Jade Lowe

    What is Equality?

    Equality is the state of being equal, especially in status, rights, or opportunities. Equality is a human right. It prevents discrimination. It’s all about inclusion.

    The Equality Act 2010

    It was created in 2010. It is comprised of 115 sections, which includes the DDA. Inclusion is a key theme of this Act. It covers the workplace and society.

    Example of Unconscious bias in the Workplace 

    Historically, there has been a gender pay gap. However, this has changed, at least since 2017, according to the gender pay gap factsheet. file:///C:/Users/Daniella%20Lowe/Downloads/Gender-Pension-Gap-Factsheet.pdf. This factsheet shows evidence that people (women in particular) are now encouraged to discuss salaries with each other. This will definitely expose and clamp down on discrimination.

    For more information on how to beat the Gender Wealth Gap visit- https://www.hl.co.uk/free-guides/thank-you?SQ_DESIGN_NAME=ppc&guide=https://www.hl.co.uk/__data/assets/pdf_file/0009/16042734/Gender-Pension-Gap-Factsheet.pdf&pub=TGWG&name=on%20how%20to%20beat%20the%20gender%20wealth%20gap.

    What stayed the same?

    • Still paying lip service.
    • Disability Employment gap still remains high. But there are some improvements to this such as the Access to Work for the Self Employed. This covers disability.
    • Benefit changes have disadvantaged disabled people.

    Also, taxi drivers still overcharge wheelchair users despite the Equality Act 2010 Taxi Annexa. Well, at least that’s what my experience has been.https://www.legislation.gov.uk/ukpga/2010/15/contents.

    What does the future hold?

    • We expect more action instead of information and promises.
    • Intersectionality must be focus of progress.
    • Culture of organisations must be inclusive.
    • Inclusion cannot be bias – it means all, not our favourite parts. 

    As an overview, this means that there is still work to be done. Law reinforcement and accountability must take place. Hopefully ten years from now we can expose all inequalities and have disparities resolved.