The View from Where I Sit

Category: Dealing with Disability series

  • WHAT IS AN ASBAH AMBASSADOR?

    WHAT IS AN ASBAH AMBASSADOR?

    By: Daniella Jade Lowe

    The Association for Spina Bifida and Hydrocephalus is a charity that was founded in 1967. ASBAH is the local association and does peer support, activities and events to bring the Spina Bifida and Hydrocephalus community together.

    Katy Raven is the Project Manager for ASBAH. This charity is comprised of volunteers, parents/carers, children, adults and committee members.

    This organisation covers North and West Yorkshire which includes Cheshire, East Riding of Yorkshire, Greater Manchester, Halton-Runcorn, Halton-Widnes, Kingston Upon Hull, Lancashire, Merseyside, Middlesbrough, North East Lincolnshire, North Lincolnshire, North Staffordshire, North Yorkshire, Redcar/Cleveland, Shropshire, South Yorkshire, Wakefield, Warrington, West Yorkshire, Wigan and Wirral.

    ‘Supporting you to flourish and thrive’ is the slogan for the ASBAH foundation. By supporting, informing, and campaigning, North & West Yorkshire ASBAH is continuing to help promote individual choice, control, and quality of life for all the people who use their services.

    It is very important for people who are born with a developmental disability to have a good support network through peer support and befriending, especially if they are excluded from mainstream education and employment and always have to push for inclusion. It helps them to thrive and flourish.

    For the past 13 years, I have been a recipient of this charity’s services. They’ve helped me with medical support, educational advice, Spina Bifida clinics, job-searching assistance, interviews, companionship, advocacy, applying for financial support and wheelchair services. They also played a role in helping me get my first electric wheelchair during my first year of college.

    It all started back in the summer of 2009, when I originally moved to Bradford to start college. Upon arriving at the student accommodation, I met Miss Joan Pheasant, a chairman from the board of the ASBAH foundation. I found out about this charity through online research while still living in Bermuda. My case was slightly unusual because, I think I am the only international ASBAH member.

    For the sake of awareness, this organisation has decided to start an initiative called ASBAH Ambassadors and I’ve chosen to join in to advocate for others with Spina Bifida and Hydrocephalus.

    For example, one way that they do this is by celebrating Spina Bifida Week from October 25th to the 29th annually. During this week, they have campaigns and forums to educate people on the subject.

    In my opinion, being an ASBAH Ambassador is about disability representation, not just sharing information and advocating. It’s also about raising awareness. For me, being an ASBAH Ambassador is also about networking. This is why we have a befriending initiative too.

    I strongly feel that this charity has helped me to mature and properly manage my disability related issues. I definitely found it difficult to prioritise my medical affairs, finances, social life and education, especially during my first year of college.

    When I first started college, I remember participating in the Go Folic Campaign with ASBAH for Spina Bifida Week (https://www.totalhealth.co.uk/blog/importance-folate-prior-conception-go-folic-you-frolic). These campaigns and forums taught me how to improve the way I take care of myself, especially in diet and personal hygiene. ASBAH has definitely helped me to flourish and thrive in my health, education, social life and finances.

    Joan Pheasant has even helped me with transportation to and from appointments and legal advice (https://www.keighleynews.co.uk/news/12965951.keighley-group-takes-taxi-overcharging-campaign-district-wide/.)

    I’ve also been to various annual social events like afternoon tea at the Clevedon House in Ilkley and Christmas dinners in Leeds, as a member of the ASBAH Association. One Sunday, we even went to lunch at the Cow and Calf in Ilkley.

    I appreciate this and feel it was beneficial to me because I know what it is like to live in a country that does not provide these services. I’ve learned a lot from this charity, like how to approach interviews and applying for benefits. I also feel that my social skills have improved. This charity is definitely needed and a great asset to the community especially for the expectant families and parents with Spina Bifida and Hydrocephalus. When I grew up I didn’t have access to these services. I went to private nursery and preschool because not everyone was willing to take on a child with a disability.

    For more information, you can check out their Facebook page: https://www.facebook.com/ASBAHNWY.

    You can also log onto their website: https://www.nwyasbah.org/?fbclid=IwAR3GIzZsOSyRXiRwD7l-qiVaDIle0ezgXHk7puKhBNDnh_PEPTT6cuVuBP4.

  • Interview with Lwazi Ncube Foundation

    Interview with Lwazi Ncube Foundation

    I was given another wonderful opportunity to be interviewed by another disability oriented organisation called the Lwazi Ncube Foundation. The Lwazi Ncube Foundation is an organisation created to build, encourage and inspire others with disabilities.

    Hello, Introduce yourself – Name and what you do. My name is Daniella Jade Lowe. I do not work for anyone, but I am working on marketing myself as an Accessibility Consultant. Journalism and Politics are my passion. I have a BA degree in History and Politics.

    What type of disability do you have? At birth, I was diagnosed with Spina Bifida and Hydrocephalus which are neurological conditions. As a result, I use a wheelchair for mobility.

    What is disability to you? The only disability is a bad attitude. I have a disability. It doesn’t completely define me; it just enhances me in a way which differentiates and strengthens me. My disability should be viewed as an ability: to see the world in a different way. I don’t really like the term because sometimes it indirectly implies someone is dysfunctional or helpless. The most important thing is to never make assumptions. Someone with a disability can be very, physically, fit and strong, highly intelligent and articulate.

    What has been your experience from the time you remember till now? – positive and negative experiences. My life as a wheelchair user has been generally okay. Wheelchair Accessibility is frustrating. I was teased a little in school. Other than that, life is great.

    How do you cope with: -daily activities – your disability, do you have times when you are down – people’s reactions towards you. I have carers, a Social worker, District Nurses, a GP, and extended family in this country. I am also in contact with a local disability charity in Yorkshire. I also have a friendly landlord.

    How do you keep yourself motivated? I must stay organised and practice good time management. I also prioritise my plans. When it comes to religion, what is your belief in terms of how you were created? – do you blame God – do you trust God?

    No, I do not blame God for the way that I was born/created. Yes I’ve been prayed over before about healing but I do love my life.

    When it comes to the African society what has been your experience – if you have visited Africa what has been your experience? No experience

    Compare the UK experience with the Caribbean experience. The weather is warmer in Bermuda than the UK. The UK is bigger than Bermuda. Wheelchair Accessibility and Disability Rights is better in the UK than Bermuda. What is your word or advice to those with disabilities? Don’t let people put you in a box. You have a voice, use it. What is your word or advice to the society?

    Don’t give up on people with disabilities. Give them a chance at life. Don’t discriminate, neglect and push them to the side. Strive for inclusion for all.

    Tell us about your platforms if you have any- Blog: The View from Where I Sit Facebook: Daniella Jade Lowe Instagram: @daniellajadelowe/@theviewfromwheresitblog To follow and support the Lwazi Ncube Foundation, you can stream their YouTube channel https://www.youtube.com/channel/UCep8lS9TmXP8GPZ3oRABhYA. They can also be found on Facebook: https://www.facebook.com/lwazincubefoundation/videos. Thank you!

  • Substitute Teaching with Spina Bifida

    By: Daniella Jade Lowe

    This weekend I had the wonderful privilege of interviewing a substitute teacher named Sarah Alley who also happens to have Spina Bifida like me. Here is what she had to say:

    1. 1. What is your profession?

    I am a substitute teacher, and my degree is in the Family Science (counseling) field, although

    2. What is your educational background?

    I also have about 2 years of education credits.

    3. Where do you work?

    I work at a small, private special education school that specializes in language learning differences like dyslexia, dysgraphia and dyscalculia (math).

    4. What sparked your passion for it?

    I have always loved children and have worked with them in multiple ways over the years (nursery/children’s ministry at church, daycares and schools on Latin American mission trips, volunteering at a Spanish immersion school in my city, subbing, etc.), and all of that confirmed that I want to do something in this field to help kids.

    5. What is the difference between adaptations made for disabled teachers vs adaptations made for disabled students?

    I think the main differences between the two are that for students there are actual educational support services (tutoring, technology services–hearing devices and technology programs/platforms, etc.), but for teachers, while there may be technology services like headphones/microphones or walking aides to help navigate classrooms or hallways, there are not official support services like with students. I may not be aware of all that there is available for each, since I am only a substitute teacher working at one school. I do not see what is available at public schools or other school systems.

    6. What is the difference between substitute teaching and fully accredited teaching?

    Substitute teaching is only “as needed”, so it isn’t even part time. Also, as far as accreditation, one thing that I have learned from the specific school that I work at is that they do not require their subs to be accredited/licensed or even to have the special training that all accredited teachers are required to have in order to teach students who have dyslexia (Orton-Gillingham, a hands-on, multisensory approach). It is highly encouraged because it really helps the sub to relate better to students, but they don’t have to have it. Also, we are not required to have a teaching license, whereas accredited teachers are.

    7. Are you training to be a fully accredited teacher?

    I am not training right now to be a fully accredited teacher, although I have thought about it. If God leads me down that path, I might do it in the future, but for now I’m not sure I want to spend more time in school to get that degree/accreditation, and I feel that I can make the most difference as a substitute teacher.

    8. What is it like being a substitute teacher with Spina Bifida and Hydrocephalus?

    For me, being a substitute teacher with Spina Bifida and Hydrocephalus has been a good experience. I have not had problems with Hydrocephalus, and although I do occasionally have a hard time with comprehension or processing the information that I am asked to review or with questions I am asked, it isn’t usually a problem.

    Also, in my specific school, I have a lot of support from the faculty and staff, as well as students, so if I need help with anything I don’t have a problem getting it. I often even have students offer to help me carry my lunch to my room or pass out papers/assignments.

    One really good example of this support was one time when I got a call from a teacher at about 7am to sub for her that day because she had a family emergency. I told her I would love to, so I got to school by the time school started and went to look at the plan and figure out what we were doing.

    However, because the teacher had a family emergency and had to leave town at the last minute, she did not have time to leave lesson plans for me. I spent some time trying to think of activities and looking through books to figure out what the class was working on. When I could not come up with much, I walked next door and told another teacher, who has always been very supportive of me, about my dilemma and asked him what I should do. He told me to go back to my room and he would write something up with “some activities”. He ended up writing up an entire lesson plan for the day! It was easy for me to follow, and I don’t remember having much trouble even with comprehension.

    9. How do you cope being a teacher with Spina Bifida and Hydrocephalus while substitute teaching students with Dyslexia?

    When I was in school (all throughout grade school and college), my favorite subjects were reading, English/grammar and spelling. The reason for this is because I am much more right-brained (creative/speech/etc.) than left-brained (logic/reasoning). I have always been good at those subjects and love to read.

    Wow Sarah Alley! I’ve really learned alot. Thank you for your time.

  • International Day of People with Disabilities

    By: Daniella Jade Lowe

    ‘Disability equals diversity not disadvantage.’

    To highlight this message, the UN has marked the International Day of Persons with Disabilities since 1992, to spread the word on disability issues and mobilise support for the dignity, rights, and well-being of persons with disabilities.

    The day also aims to draw attention to the benefits to society of including persons with disabilities in every aspect of political, social, economic, and cultural life.

    Celebrated on 3 December around the world, IDPD mobilizes support for critical issues relating to the inclusion of persons with disabilities, promotes awareness-raising about disability issues and draws attention to the benefits of an inclusive and accessible society for all. UN agencies, civil society organizations, academic institutions and the private sector are encouraged to support IDPD by collaborating with organizations for people with disabilities to arrange events and activities.

    The Australian Government has been supporting IDPwD, since 1996 and provides funds to promote and raise awareness of the day around Australia. Building on many decades of UN’s work in the field of disability, the Convention on the Rights of Persons with Disabilities, adopted in 2006, has further advanced the rights and well-being of persons with disabilities in the implementation of the 2030 Agenda for Sustainable Development and other international development frameworks, such as the Sendai Framework for Disaster Risk Reduction, the Charter on Inclusion of Persons with Disabilities in Humanitarian Action, the New Urban Agenda, and the Addis Ababa Action Agenda on Financing for Development.

    The logo of the United Nations International Day of Persons with Disabilities comprises four semi-circles of different colours representing human hands, with a solid blue circle at the centre.

    This year, in honour of International Day of People with Disabilities, WindReach Bermuda, will be hosting a Virtual Conference on 3 December 2020 with the theme of ‘Amplifying Community Voices’.

    We are hoping to address a few topics during the day including speakers on the history of disability in Bermuda, how those with disabilities are perceived, having individuals’ voices heard in their own lives. Both Employment and Accessibility will be panel discussions with Bermudian experts and those living with disabilities.

    https://www.windreachbermuda.org/donate?fbclid=IwAR22i-YNIxYvFAc4N9VqFB4x7VFmn4w4Zq4aRR1_EORJrX4ks3qBnhN52QM

  • Access to Work Grant 

    By: Daniella Jade Lowe

    Self employment is a form of independence for the disabled. Self employment is a form of freedom and self reliance. Many people like the idea of working for themselves because they have no one to be held accountable to. However, there are many challenges to self employment, especially for a person with a disability.

    Challenges of Self Employment

    The challenges above and beyond for a disabled self employed person:

    • Fluctuating conditions
    • Business hours affected
    • Accessing finance
    • Solutions are not always possible
    • Accessing the right advice
    • Accessing transport


    The term ‘disabled’ has the same meaning as in the Equality Act 2010. This defines disability as ‘a physical or mental impairment which has a substantial and long-term adverse effect on one’s ability to carry out normal day-to-day activities’.

    The term disabled can also include disabilities that only become apparent in the workplace. An example of this might be where you started work and found that your eyesight was affected by computer screens but had not noticed this problem before you started work.

    1.What is Access to Work?

    Access to Work is a government programme aimed at supporting disabled people to take up or remain in work. Access to Work is a discretionary grant scheme that provides personalised support to disabled people who are:

    • in paid employment
    • self-employed
    • apprentices
    • trainees
    • supported interns
    • doing self-directed work experience
    • on Jobcentre Plus promoted work trials
    • going to a job interview
    • You can also apply if you have:
    • a job offer letter
    • a job start date
    • a letter confirming your interview

    There have been changes to Access to Work due to the coronavirus outbreak.

    2.Who can get help?

    The Self Employed can apply for the Access to Work grant if they earn £6000. They can also apply if:

    • are disabled, have a mental health condition or have a long-term health condition that impacts on your ability to work;
    • are aged 16 or over; and
    • live in England, Scotland or Wales – there’s a different system in Northern Ireland
    1. What help is available?

    Access to Work support covers a wide range of interventions beyond ‘reasonable adjustments’ associated with overcoming work-related barriers resulting from disability. The support package is agreed based on individual need.

    Examples of the kind of help available through Access to Work are:

    • A communicator, advocate or BSL interpreter for a job interview, if you’re D/deaf or have communication difficulties.
    • a support worker, such as a reader for somebody with a visual impairment; communicator for a hearing impaired person; a specialist job coach for a person with a learning difficulty; or a helper for personal care needs at work
    • Specialist equipment (or alterations to existing equipment) to suit your particular need.
    • Help towards the additional costs of taxi fares if you cannot use public transport to get to work
    • Support via Access to Work’s dedicated Mental Health Support Service.
    • Young people who start a work placement with an employer as part of the Department for Education supported internship programme or a traineeship will be able to apply for Access to Work support for the time of their work placement only.

    Access to Work will fund additional travel, job coach and other support, including costs of equipment if appropriate, and promote the smooth transition into paid employment.

    No other types of unpaid internships or traineeships will qualify for Access to Work support.

    1. Help available for people with long-term mental health conditions

    A free and confidential ‘Mental Health Support Service’ is available to anyone with a mental health condition through Access to Work.

    The scheme offers:

    • Work-focused mental health support for up to nine months tailored to your needs
    • An assessment of your needs to identify suitable coping strategies
    • A personalised support plan, detailing the steps needed for you to remain in, or return to, work
    • Ideas for adjustments in the workplace or of working practice

    Support for Apprentices

    This free service supports apprentices who are feeling low, upset and struggling to keep up with their apprenticeship. It is completely confidential and run by fully trained professionals with expertise in mental health.

    To qualify for this service, you must:

    • be in an apprenticeship (attending or signed off sick); and
    • have a mental health condition that has resulted in absence, or is causing difficulties to remain in your apprenticeship
    • What help is available?

    An expert will provide you with emotional well-being support and advice for nine months; they will help you to cope better so you can concentrate on your apprenticeship; develop a step-by-step support plan to keep you on track; advice on workplace adjustments; and help an employer understand how they can best support you if you are experiencing a mental health condition.


    How to access the supporting apprentices scheme:

    Tel: 0300 456 8210
    Email: apprentices@remploy.co.uk
    https://www.remploy.co.uk/employers/mental-health-and-wellbeing/supporting-apprentices-service.

    1. Amount of grants

    There is no set amount for an Access to Work grant. How much you get depends on your specific case. The grant will only cover the support needed to let you stay in work or in self-employment.

    There is an annual cap on the total amount of support that can be provided under Access to Work; this is currently set at £60,700.

    Access to Work will pay 100 per cent of the approved costs (subject to the cap):

    • for travel to work, for a support worker/reader or a communicator for support at job interviews;
    • if you are unemployed and starting a new job;
    • if you have been working for an employer and have been in the job for less than six weeks; or
    • if you are self-employed or setting up your own business through the New Enterprise Allowance.
    • If you have been in your job for six weeks or more when you first apply for help, Access to Work will pay a proportion of the costs of support as follows: (As the employer, you will contribute 100% of costs up to the threshold level and 20% of the costs between the threshold and £10,000.
    • Employers with less than 50 staff: Access to Work can pay 80% of the approved costs.
    • Employers with 50 to 249 staff: The employer will have to pay the first £500 and Access to Work can then pay 80% of the approved costs up to £10,000.
    • Large employers with 250 or more staff: The employer will have to pay the first £1,000 and Access to Work can then pay 80% of the approved costs up to £10,000.
    • Access to Work would normally cover all additional costs over £10,000, subject to the cap.
    1. What Access to work cannot cover

    The Equality Act 2010 places a duty on an employer to make reasonable adjustments for disabled employees. Access to Work funding cannot be used to support these adjustments.

    Access to work will also not fund items which are regarded as standard equipment, standard business costs or standard health and safety requirements. This means that any item which would normally be needed to do the job, whether a person is disabled or not, will not be paid for.

    1. Students

    If you need communication help for a job interview before graduation, you should be able to access this service, even though you’re still studying.

    If you have a disability or specific learning difficulty and are studying in higher education, you may be eligible for Disabled Students’ Allowances.

    1. Employers and Access to Work

    When you’re applying for jobs, you should mention to your potential employer, either at the application stage or in your interview, that Access to Work may be available to you.

    Access to Work information for employers is available at http://www.gov.uk/government/publications/access-to-work-guide-for-employers.

    Access to Work also has an eligibility letter, which you can give to your employer or take to a job interview.

    1. How to apply?

    You can apply online.

    Telephone: 0800 121 7479

    Textphone: 0800 121 7579
    Monday to Friday, 9am to 5pm
    Find out about call charges

    British Sign Language (BSL) video relay service

    To use this, you must:

    • first check you can use the service
    • go to the video relay service
    • Monday to Friday, 9am to 5pm

    Alternative formats

    Call the Access to Work number to ask for alternative formats, such as braille, large print or audio CD.

    If you need an alternative way of contacting Access to Work to discuss your needs, you can write to:

    Access to Work
    Operational Support Unit
    Harrow Jobcentre Plus
    Mail Handling Site A
    Wolverhampton
    WV98 1JE

    Supported Internships and Traineeships

    The application process for those on supported internships and traineeships wishing to apply to Access to Work includes:

    • The provision for a supported employment provider to make an application on behalf of an education provider (education providers can still make the claim if they would like to do so)
    • One placement per month for each student
    • The ability to make applications up to three months in advance.
    • For a flowchart setting out who may be eligible for Access to Work funding and the form for applying for Access to Work funding go to:

    https://www.preparingforadulthood.org.uk/downloads/supported-internships/access-to-work-fund.htm

    Completed applications should be sent to the dedicated Access to Work team at: Atwosu.london@dwp.gsi.gov.uk.

    Northern Ireland, the Isle of Man or the Channel Islands

    You cannot get Access to Work support if you live in the Isle of Man or the Channel Islands. There is a different system in Northern Ireland.

    Forms

    Access to Work uses a specific medical form in connection with claims for travel to work. The form can be completed by someone who knows you well, giving a clear indication why you need support with travel to work. Once completed, this then needs to be signed by a medical professional to verify that the information is accurate.

    This could be your GP, Practice Nurse, Psychiatrist, Psychologist or Learning Disability Nurse, but it can’t be signed by a non-medical person such as Social Worker or Support worker.

    1. How long is Access to Work funding available for?

    Access to Work funding agreements can cover up to three years. Reviews normally take place annually to assess if continued or further funding is needed. As long as you need the funding, you should continue to get it.

    1. What if I disagree with an Access to Work decision?

    You cannot appeal against an Access to Work decision, but you can ask for it to be reconsidered by a different Access to Work Adviser. To arrange this, use the contact details at the top of your award letter.

    If your circumstances change, such as if you change employer or your job role, you can ask for your award to be reviewed.

    If you have a complaint about the service you have received from Access to Work staff, you can use the DWP complaints procedure.

    1. Where can I get more help or information?

    For general information on Access to Work, go to http://www.gov.uk/access-to-work.

    You can get help and information at your local advice centre, such as Citizens Advice. https://www.disabilityrightsuk.org/access-work.

  • Dealing with Disability in the Home: Second edition of series

    By: Daniella Jade Lowe

    Housing and assisted living can be quite scarce for people with disabilities. Most times people with disabilities live with family where they rely on parents for support.

    While living with Spina Bifida and Hydrocephalus, I’ve had the privilege of living in two separate countries, which means I’ve had two separate homes. I was born in England, raised in Bermuda. I have dual nationality, which has resulted in dual perspectives on disability.

    I lived with my parents in Bermuda during my early school years, then I lived independently in England. I completed Primary, Middle and High School in Bermuda then completed college and university in England.

    Living in both countries has been an eye opener for me especially from the perspective of being a wheelchair user.

    Housing in England vs Housing in Bermuda

    Housing in England is completely different to Housing in Bermuda, especially for people with disabilities.

    During my college and university years, I lived in student accommodations that were modified for wheelchair users. Cultural differences impacted this. Once I completed university, I transferred to Assisted Independent Living. I live at a housing scheme called Five Oaks Housing Scheme under Sanctuary Housing Association in Ilkley. Sanctuary Housing Association is a housing corporation dedicated to the disabled community in the UK. https://www.sanctuary-housing.co.uk/.

    I have a great landlord who meets with the residents and I on a quarterly basis. She also communicates effectively, in-person, by phone and email. My bathroom is equipped with handrails to make transferring easy. I also use a profiling bed in addition to my height adjustable electric wheelchair. All counters and tables are low enough for me.

    However there are other people in my flat who require the use of assistive technology.

    Residents who are either unemployed or actively job seeking are eligible for Housing Benefit pays rent in the UK.

    One recurring issue that I’ve experienced in relation to housing is having access to showering facilities instead of bathing facilities. I personally prefer baths to showers.

    According to my research, Bermuda offers Summerhaven Trust. Summerhaven Trust is an assisted living residential complex that provides the opportunity for people with physical disabilities to live in the community. https://helpingservices.bm/listing/summerhaven-residential-home/

    The Bermuda Housing Corporation provides loans for the elderly and the disabled in Bermuda. https://www.bhc.bm/senior-disabled-loans/.

    For the last house that I lived in, before moving to England, my family sought to make the house wheelchair accessible with an escape route for me in case of a fire or flood, by the patio area, but the Department of Planning wouldn’t let us do so because it was too risky. Bermuda has legislation for this. https://planning.gov.bm/index.php/planning-legislation/.

    During my high school years, my father teamed up with a family friend to implement a lift at my house at one point because there were stairs to access and exit the house. Bermuda has legislation for this. http://www.bermudalaws.bm/laws/Consolidated%20Laws/Building%20Authority%20(Elevators%20and%20Lifts)%20Regulations%201962.pdf.

    Additionally, the Disabled Living Allowance is also available while living out here. I’ve also received additional support from Carers like Dignicare and Visioncare.https://www.dignicare.co.uk/, http://www.visioncare.co/.

    https://www.ilkleygazette.co.uk/news/10128744.ilkley-community-centre-back-in-business-after-a-two-year-closure/

    Wheelchair Accessibility: Functioning in Dysfunction

    This is one of the main reasons why I moved to England from Bermuda as a high school graduate.

    Wheelchair Accessibility and mobility issues are just some of the problems that I face as a wheelchair user. Access alleviates the amount of limitations and restrictions on wheelchair users. Failing to ensure wheelchair accessibility is neglecting to provide reasonable adjustments. It is like functioning in dysfunction.

    However, despite all of this, people with disabilities, like me, can lead independent lives even though we experience a restricted level of independence. Yes we do have preferences, goals and ambitions. We also have rights too.

    Throughout this whole ‘Dealing with Disability’ series, I’ve learned that both countries have endeavoured to make mandatory reasonable adjustments for people with disabilities through legislation and finances. Reasonable adjustments, finances and legislation enable us to live independently. This is the way we deal with life.

  • Dealing with Disability in the Church: Third edition of series (Three Perspectives)

    Dealing with Disability in the Church: Third edition of series (Three Perspectives)

    By: Daniella Jade Lowe

    Dealing with Disability in the Church hasn’t been all that bad for me. First of all, I’d like to start out by saying, I’ve attended church all my life. I love church. I get involved in church services mainly by serving on the Audiovisual/Technical Team. I enjoy this.

    While living in Bradford I noticed that their churches have their own private buses to pick up and drop off their members.

    Now I’ve got one ‘bone to pick.’ Why are public buses in England expected to be wheelchair accessible but not private buses? Just an observation.

    However, whenever I asked to use it instead of taxis, I was told they do not take wheelchairs for liability reasons. Also I noticed the church I first attended, had a wheelchair section for easy access in case of a fire. I also attended a university campus church in Bradford.

    On the other hand, while living in Ilkley, there is one church that has a disability ministry for those with intellectual disabilities called the Ark, which meets the first Sunday of every month from 3pm to 6pm. Some other churches may even have Sign Language interpreters for the hearing impaired.

    In relation to handling disability, churches should take on The Good Samaritan Approach.

    Prayer

    I appreciate prayers. I have been asked to be prayed for and gladly accepted such. It can be slightly frustrating when your expectation for a change is so high and it doesn’t come which has discouraged me at times. But I do believe in miracles.

    However, I also know someone who has autism of a different persuasion. Her experiences in the church have almost never been positive. Many times, Christians have prayed for her to be healed of autism.

    She does not personally want to be “healed” of autism, because she believes that God intentionally allows some people to be born with autism or Down Syndrome for his own good reasons, and that these people are fearfully and wonderfully made in the image of God, and perfect just the way they are. They do not need to be healed; God made them like that.

    She feels that her autism is an integral part of who she is, and is not a negative thing, but rather a positive one. She does not feel that autism holds her back.

    When church people pray for her to be healed of autism, without asking her first whether she wants healing, or despite my objections to what they’re doing, that does not empower me. They are deciding on my behalf what direction they think my life should take, but they do not have that right; it’s my life. People with disabilities deserve to be in control of their own lives.

    Instead of being “healed,” all she wants is to be accepted by the church for the peculiar, wonderful, autistic person who she is. She needs acceptance and inclusion.

    When people pray for her to be healed of autism, she perceives them to be indirectly saying,

    “I want God to change you into a normal person, for my own comfort, because I can’t handle that we have a disabled person in our church. I don’t want to deal with having to include disabilities, so it’s easier if I can just try to heal them instead.”

    She fully believes that God does have the power to heal people. But she also believes that when church members wish to pray for a disabled person’s healing, they need to first ask that person whether he or she wants healing or not. If the disabled individual declines the offer, church members need to fully respect this, and not keep pushing healing on the person.

    It is good to be content and happy with life. I do agree to some extent. There is also a way of embracing disability without accepting it as if there’s no hope.

    In other words exhibit faith, despite the odds! Don’t glorify the problem, glorify the problem solver.

    Stating the facts about one’s medical condition isn’t necessarily claiming it but acknowledging that something is different about the way a person functions. We shouldn’t live in denial and shame, especially if people ask genuine questions out of curiosity.

    The Stigma around Medical Intervention

    Another subject I don’t understand is the notion that surgery or taking medicine isn’t faith. I believe God can heal through medical science. Sometimes medical intervention is part of the process. There is also nothing wrong with prayer and a psychologist, social worker or carers.

    Besides, faith without works is dead. I also notice that people tend to judge by appearances. I’m not looking for pity but inclusion.

    Wheelchair Accessibility: Functioning in Dysfunction

    Some churches in England have a health and safety policy where they have designated seating for the physically challenged. They’re also wheelchair accessible for the most part too.

    Wheelchair Accessibility and mobility issues are just some of the problems that the physically challenged face. Access alleviates the amount of limitations and restrictions on wheelchair users. Failing to ensure wheelchair accessibility is neglecting to provide reasonable adjustments. It is like functioning in dysfunction.

    I get really annoyed with drivers who park across dropped kerbs. Dropped kerbs are meant to make it easy for wheelchairs to enter and exit sidewalks. I think that drivers should either be fined or vehicles towed. Alternatively, if the church building isn’t wheelchair accessible, there is the option of watching services online, but then the problem with that is, one can’t mix and mingle with other believers. I suppose this will always be an issue depending on where one lives. There are many other issues that this subject can cover but this video should do the job. Why should your church be Disability Friendly?

  • My Audio Interview on Disability Advocacy with the Big Girl Panties Podcast

    My Audio Interview on Disability Advocacy with the Big Girl Panties Podcast

  • Dealing with a Disability in the School (Mental vs Physical): Fourth edition of series

    By: Daniella Jade Lowe

    In this article, my friend and I are going to share our experiences in dealing with both mental and physical disability in the school.

    Dealing with physical disability in my life has been interesting and quite a learning experience for my family and I. My educational career has been interesting because I’ve lived and studied in Bermuda and England.

    Bermuda deals with disability in schools differently to England. England is more advanced, probably because it is much bigger and there’s more access to resources.

    For example, I attended private Nursery and Preschool in Bermuda, because it was hard to find someone to take disabled kids for liability reasons. There are currently no charities dedicated to Spina Bifida and Hydrocephalus in Bermuda. ‘Teach Us All!’

    From primary school to high school, since I claimed disability, I got Paraeducators, nowadays, known as shadow teachers in Bermuda. In Bermuda, I also got extra exam time, an exam scribe, a separate room and exam invigilator. I experienced the same in England.

    During my first year of primary school, my mother visited everyday just to make sure that the school was doing their job. However, the principal threatened to put a restraining order on her, so she stopped.

    In England, exam scribes and note takers aren’t expected to know anything about the subjects, they’re just expected to make notes and write exams for the student. This holds the students accountable for their own education and success. Students must choose between extra time or an exam scribe, not both to prevent cheating. These exam scribes and notetakers come from an external agency called Clearlinks. Clearlinks employs them, not the university. Students also get Study Coaches and specialist equipment. Ergonomic Assessments are also required for wheelchair users.

    Discrimination

    During my educational career, there was one recurring issue that I encountered at every school I attended. This was ‘the right to an education’.

    The Human Rights Act protects the right to education within all existing educational institutions. It applies to primary, secondary and higher education. So why did my parents have to fight to make sure I got into mainstream, public education?

    Why were there some teachers at the schools that I attended, who refused to teach me simply because they disagreed with my rights to be there?

    As someone who has a physical disability, I never understood this. Besides, the Human Rights Act 1981 including the Universal Declaration of Human Rights and the European Convention on Human Rights applies to Bermuda too.

    My high school years were quite tricky. In Bermuda, there were two public high schools to choose from. One high school was wheelchair accessible from its inception, whereas the other one wasn’t. I was hoping to attend the wheelchair accessible high school because it was easier to get around, however I went to the alternative high school because even though the one I wanted had easy access, integration was a problem. ‘Teach Us All!’

    I felt this was unfair because I was marked down for attendance and my class participation was affected, especially when there was a wheelchair accessible alternative. In relation to specialist equipment, my parents and I invested in a Garaventa Stair Trac from Canada, which was designed to get me up and down staircases. The only staircase it wasn’t compatible with were spiral ones.

    Fortunately, after the first year, I transitioned to a newly refurbished and wheelchair accessible building equipped with ramps, lifts and flat surfaces. This made attending classes a lot easier and improved my attendance record and class participation.

    However, I went through my second year of high school without a Paraeducator because the school felt that I should be able to cope. My parents and I disagreed with this. Having a Paraeducator made it easier to transition from class to class within five minutes. Having that extra assistance of a Paraeducator also made test taking and note taking more manageable.

    Unfortunately, I had to complete summer school that year for failing Maths. Things improved after receiving a new Paraeducator the following year.

    After high school, my first year of college was quite stressful and intense. I was enrolled to complete A-Levels. I had just moved from Bermuda to England after graduating from high school. I had to familiarise myself with a new education system and a new environment. The teachers weren’t as understanding or empathetic towards my educational background, learning styles or needs. The A-Level programme was quite competitive where some lecturers only put their best cohort of students up for January and May exams leaving the weaker students out, while other lecturers put a whole class forward and let them ‘wing it’ for the experience.

    On this particular course, I felt discriminated against because, unlike the rest of my lecturers, my English Literature didn’t give me a shot at a mock exam in preparation for the real exams. She told me that I wasn’t working at the ‘A-Level standard.’ In response to this, I complained to the Directorate of the college with an unsuccessful outcome.

    Mental Health

    Alternatively, dealing with mental disability is different. My friend’s biggest problems have been, firstly, depression, which university recognised, but I don’t think most people in general have much idea of the impact of their actions and a lot are incapable of being nice, full stop.

    According to the Equality Act 2010, depression is classified as a disability, and anyone with it is covered by the Act (https://www.mind.org.uk/media-a/3123/disability-discrimination-2019.pdf). This needs to be reinforced.

    Integration in Mainstream School versus Special Education

    Even though special education has its place in society, especially for those with severe disabilities, it is better for them to be integrated into the mainstream public education because mainstream qualifications are given more value than special qualifications. Public mainstream colleges and universities recognise mainstream qualifications not special qualifications. Special education may also possibly undermine one’s full potential. ‘Teach Us All!’

    For example, I had a Canadian friend in university, who had Asperger’s Syndrome, that went to special school all his life, and had to complete his G.E.D before starting university in England, because his special qualification wasn’t accepted by the university’s standards.

    However, when I was in school, I was integrated all throughout my educational career, but two of my subjects like P.E and Maths were modified due to having a physical disability and additional learning difficulties.

    Schools are also expected to conduct risks assessments for health and safety reasons. They should also provide a Personal Emergency Evacuation Plan in case of any emergencies like fires or flooding. This is what I got during my college and university years.

    All schools have some level of a duty of care and can be held responsible for accidents.

    I am in full support of integration, but I think the best way to ensure and reinforce this is to provide extensive teacher training. Colleges and Universities in England have Student Councils and Student Unions that include Disability Officers on their teams. Also at the primary school level in Bermuda, there is a PTSA Board. I think PTSA Boards may need to include a special element specifically for disabled students, similar to British colleges and universities’ student unions and councils.

    Integration should also include modification not accommodation. When a student has an Individualized Education Program (IEP) you’ll likely hear the word accommodation. An accommodation changes how a student learns the material. A modification changes what a student is taught or expected to learn.

    Homeschooling is another viable option which may help decrease discrimination and cater to personal needs.

    Wheelchair Accessibility: Functioning in Dysfunction
    Wheelchair Accessibility and mobility issues are additional problems that wheelchair users face daily. I experienced this many times in Bermuda, especially at school. Access alleviates the amount of limitations and restrictions on wheelchair users. Failing to ensure wheelchair accessibility is neglecting to provide reasonable adjustments. It is like functioning in dysfunction. Fortunately AccessAdvisr helps to tackle this in England. I still think that people must be mindful.

    According to the British Government website, anyone can apply for a dropped kerb in England (https://www.gov.uk/apply-dropped-kerb). However, I get really annoyed with drivers who park across dropped kerbs. Dropped kerbs are meant to make it easy for wheelchairs to enter and exit sidewalks. Some drivers even park on top of the sidewalks blocking the walkway. We need to clamp down on this with a fine both in the UK and Bermuda.

    So to conclude, I think reassessing wheelchair accessibility, integration and modifications in mainstream public education are needed to improve the way disability is handled in the schools, especially in Bermuda. Schools must become Disability Confident. This is what I suggest in ‘Dealing with Disability in the School.’

  • Dealing with Disability on the Job: First edition of series

    Dealing with Disability on the Job: First edition of series

    By: Daniella Jade Lowe

    This is the first segment of my article series ‘Dealing with Disability’. In this article, I will cover Dealing with Disability on the Job, using examples from my personal experiences.

    Lived Experience

    How does one handle disability in the workplace?

    While living in Bermuda, I’ve had sporadic summer jobs and work experience. One paid job was working as a Junior Counselor at an inclusive Summer camp for disabled and non-disabled children.

    Another paid summer job included representing Bermuda at the London 2012 Paralympic Games as a reporter. That was fun and unforgettable.

    However, after graduating from university in 2017, my real career development and job searching began. My personal experience with job searching has been very tough.

    Job hunting can be quite frustrating for the disabled community. We have special skill sets based on level of ability.

    The problem is, we need a job to get work experience, and we need work experience to get a job. Going from interview to interview without any success can be quite discouraging.

    Nowadays, there are an increasing number of disabled people starting businesses because the job searching and interview process is proving to be difficult.

    If you desire to apply for benefits, you must be eligible for it. Before one is eligible, they must have a financial assessment. The unemployed who are actively seeking work can apply for the Jobseekers’ Allowance which is paid into their bank accounts from their local Jobcentre, fortnightly.

    There is also the Employment Support Allowance and Universal Credit that one can apply for.

    Business owners are entitled to the Income Support Scheme. All of this is provided at the local Jobcentre Plus through the Department of Works and Pensions.

    Purple Tuesday is an accessibility initiative for businesses and I am proud to know that Bermuda has joined this community. This initiative promotes inclusive marketing for the disabled shopper.(www.purpletuesday.org.uk)

    All employers are expected to make reasonable adjustments, especially for wheelchair users. They’re also expected to conduct risks assessments for health and safety reasons. They should also provide a Personal Emergency Evacuation Plan in case of any emergencies like fires or flooding.

    From personal experience, I know that, the Park Place Jobcentre in Leeds, England, definitely prioritises and values the disabled community because they take precautionary measures first.

    For example, during a placement that I completed under the Department of Works and Pensions at the Park Place Jobcentre, I had to complete a risk assessment for them to make reasonable adjustments in order for me to start the placement. This included checking the accessibility of escape routes for fire drills.

    All employers have some level of a duty of care and can be held liable for accidents.

    Employers must look at job design. Job design should play to people’s strengths. Talents and skills are important.

    Employers should not give disabled people jobs out of sympathy. Problem solving skills make disabled people good candidates because they always have to overcome barriers which could make one employable.

    Inclusive Workplaces

    Channel 4 is a Disability Confident employer and they judge job applicants on their abilities against job descriptions. They try their best to recruit from groups in society that are underrepresented.

    Job Agencies for the disabled include Remploy, Evenbreak and Scope. Remploy helps get our disabled community into cleaning jobs unless they have alternative career goals.

    There’s a consultation agency called Inclusive Employers which also does this. Inclusive Employers is an organisation created to help employers develop an inclusive workplace, avoid the pitfalls of discrimination and get more from their workforce.

    Inclusive Employers provides knowledge and networks to help build workplaces where people feel valued, and can add value. Their employer members are committed to creating an inclusive workplace, maximising the potential of all employees. They strive to lead the way in breaking barriers and building success.

    Delsion Ltd. is another inclusive employer known as the People & Development Consultancy. They’re the award winning specialists in Learning & Development, Diversity & Inclusion and all things that help people and organisations reach their true potential.

    Why should organisations employ disabled people? Why not? Political correctness is the enemy of inclusion. Political correctness is the avoidance of forms of expression or action that are perceived to exclude, marginalize, or insult groups of people who are socially disadvantaged or discriminated against.

    The alternative is working from home but it doesn’t necessarily promote inclusion or diversity neither does it clamp down on discrimination.

    Another interesting aspect is blind interviews vs physical interviews. Blind interviews are better than physical interviews because candidates are judged on skills not memory or tests.

    Using technology and specialist equipment can make workplaces more inclusive for people with disabilities too.

    Wheelchair Accessibility and mobility issues are just some of the problems that wheelchair users and the physically challenged face daily. Access alleviates the amount of limitations and restrictions on wheelchair users. Failing to ensure wheelchair accessibility is neglecting to provide reasonable adjustments. It is like functioning in dysfunction.

    According to the British Government, the British can apply for dropped kerbs. However, I get really annoyed with drivers who park across dropped kerbs. Dropped kerbs are meant to make it easy for wheelchairs to enter and exit sidewalks. The Government needs to clamp down on these drivers with a fine. The same should happen in Bermuda.

    AccessAdvisr helps to monitor wheelchair access. Disabled people going places. AccessAdvisr Board members are Rob Trent and Martyn Sibley.(https://accessadvisr.net)

    The AccessAdvisr website allows disabled people to rate and find first-hand accessibility information. Photographs can also be uploaded alongside reviews. This helps to tackle wheelchair accessibility issues. It also encourages accountability and inclusion.

    So, in ‘Dealing with Disability on the Job’, we must work towards inclusion, equality and diversity in the workplace by creating inclusion in the workplace, and inclusive workplaces. This could possibly help to improve the economy on a global scale. All jobs should be Disability Confident. I think Bermuda should also adopt this scheme to work on a better future for Bermudians.